Jack’s update is first- he looked
great today. We spent his “lunch hour” nursing for about 10 min (he did better
this time than he did last time- improvement is good) and then Jack took a nap
while I looked back and forth between my son lying on my chest and my daughter
lying in her bed right next to me. It was nice to have them so close to each
other and it made me thankful they moved rooms last week. Jack also got to
spend some time with his Nana who came by today. They talked after his nap and
she held him for a moment. Jack was napping and peaceful when we left today.
Harper was also peaceful when
Nana and I left today, but she didn’t stay that way long… While I was there,
Harper was breathing well; she interacted well with the occupational therapist that
came by to evaluate her mobility. She doesn’t have some stiffness she did last
time, and her reflexes are better this time. Mom and I tucked her in after her
evaluation and she looked great. When Tony got to her three hours later, he
said she was having breathing problems. He tried to hold her while she ate and
she had desaturations and bradys pretty much the whole time. The nurse finally
suggested Tony put Harper back in her bed because her breathing just wasn’t
getting better. This, naturally, upset Tony and the situation has confused me.
Yesterday when I held Harper, I was able to find a good position for her, today
the “sweet spot” doesn’t exist. So, we have something to work on tomorrow. In
other news, here is Harper modeling the new outfit from her Great Mama Reba- I
think she likes it. Please send prayers
that Harper’s breathing tomorrow will be better than today, thank you.
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