Today is March 10th, “Parents
of Preemies” Day. When I saw this, I wondered what makes parents of preemies so
special that they have their own day on the calendar and why they would be
celebrated. I never thought that I would find myself in this group, and even
when I did, I never identified with the parents of the little ones who were on
special machines and fighting for every breath. I told myself that our kids
weren’t sick enough for us to attend the parent support meetings, and our kids
were doing too well for me to dwell on the fact that they weren’t “normal
babies”. In fact, it has never crossed my mind that they won’t be “normal”- I
suppose I might be fooling myself, only time will tell. So, I wonder if my
feelings about my preemies are any different than any feelings a parent of a full
term baby would feel. So, what does it feel like to be the mother of a preemie
in the NICU?
Helpless, hopeful, exhausted, grateful,
frustrated, overjoyed, desolate, anxious, heartbroken, humbled, small, guilty,
devoted, enraged, tender, numb, thoughtful, resentful, overwhelmed,
ill-prepared, confused, lost, lonely, uplifted, proud…and the list goes on.
I think the only difference in the
feelings of a parent of a preemie is that our shove into parenthood had no
shallow end or learning curve; we didn’t get a chance to bask in the glow of
being a new mom or a new dad, instead we were awoken in the dead of the night
to hear that Harper had been intubated. We weren’t ready or prepared for the
type of parents our children would need, or the roles that we would have to
assume so quickly. Parents of preemies in the NICU don’t get the option to
think twice; the situations unfold without consulting the people involved, but
then again, this happens to all parents. And, all parents are put in positions
where they see their children hurt, broken, and struggling, and they cannot do
anything to fix the situation aside from holding a hand, kissing a forehead, or
rubbing a back and singing a slow, low song.
The feeling of helplessness is
overwhelming some days and some days there is so much hope flowing from the
little occupants of those bassinets that it is palpable. We know what’s it like
to cry out of fear, anger, frustration, exhaustion, sorrow, and ultimate joy.
We understand the babies we hold are miracles- a true reflection of hope and
perseverance- things we took for granted only months ago. Does every parent
feel this way? I won’t know, but I assume that they do at some point- Tony and
I just reached that point earlier than most.
So, as we celebrate preemie parents
today, let me give a shout out to my favorite preemie parent who has sacrificed
more than he thought he ever would, who has given of himself even when he
thought there was nothing left, and who has been only person I would want to
become a preemie parent with. Tony, happy Parents of Preemies Day.
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